Why do people get cancer all the time? Why is Metaplastic Breast Cancer so rare? Why do some people survive and some people die? For what reason do we fight on and try and live even though inside we are falling apart?
Could it be that the world in which we live in is plagued with chemicals, additives, bad food and too much sugar? Stress is confused with career and cancer is sometimes a second chance for many of us?
I don’t know. I am not Aristotle. But what I do know is that if you find out you have Metaplastic Breast Cancer (MBC) and you need someone to talk to. Then we have the group just for you.
It can be found on Facebook. It is completely private so no one from your family can see what you write. We have three great Admins, Judy who is a three year survivor. Cari who is finishing her own chemo and radiation plan for MBC now; and me, Bena.
What we have found?
With over 200 women on our forum we have conducted surveys and questionnaires on why we think we got cancer and specifically on MBC. As you now MBC is extremely rare. It effects 0.01% of the women with breast cancer and it is extremely aggressive.
We have found that there are two common types. One that spreads to the lymph nodes and one that just grows in the breast and then jumps sporadically to other organs. We have about 15 hormone positive MBC patients on our site and the rest are triple negative.
But there are some things that all types of MBC have in common:
- It grows very quickly and very aggressively
- It is often confused for a cyst
- It can be painful and hurt (usual breast cancer lumps do not hurt)
How do we deal with Metaplastic Breast Cancer?
- We must deal with this aggressively
- Depending on age this means chemo and radiation
- In 40% of cases chemo prior to lumpectomy has worked. Unfortunately this is a bit of a gamble and depends on the type of MBC that you have. Some ladies that have had chemo and it didn’t work – progressed to stage 4 cancer quickly.
- Your chances of survival with stage 4 MBC are slim. But we have two girls on the forum that are alive and kicking.
If you are doing research on Metaplastic Breast Cancer please contact me.
If you have Metaplastic Breast Cancer and want to join our group please search Metaplastic Breast Cancer on Facebook or click here.